Looky looky--the cannula is off!! The biggest news of this past month has been that Brianne is breathing well on her own. I've been monitoring her oxygen saturation rates for the past week and she is consistently keeping them 94 and above. (Today she even pulled a 98)!! Needless to say I'm E-X-T-A-T-I-C!! at this new development. I'm convinced that a combination of thickening her milk to honey thickness and taking Previcid is keeping her from aspirating!! Yeah!! Can I say that one more time ----YEAH!!She still needs the oxygen at night--those numbers aren't staying up, but that is okay. Baby steps...one day at a time.
She is doing well....loves to interact wtih her siblings. She's still thrilled to see Liam, so I guess he hasn't tramatized her to much yet. We're still working with her to sit. We've got her sitting in a bumbo seat, however, her core muscles need more work as she's not able to sit in it for very long and when she does she's all wobbly--she bends back and forth like a rubber band.
She is doing well....loves to interact wtih her siblings. She's still thrilled to see Liam, so I guess he hasn't tramatized her to much yet. We're still working with her to sit. We've got her sitting in a bumbo seat, however, her core muscles need more work as she's not able to sit in it for very long and when she does she's all wobbly--she bends back and forth like a rubber band.
The rash, blisters and irritation on her cheeks from the tegaderm are starting to get better. Thankgoodness, I've tried many different tapes and adhesives, if it didn't hurt her then it didn't keep the cannula in place, if it kept it in place, then the tape irritated her skin. She would also take the cannula off on her own. She could get her fingers under the tubing and pull it off. Once she did that she enjoyed chewing on the cannula. I figured, well the oxygen was still getting into the lungs, just not through the nose.
But lucky for us....all this may come to a close soon. Happy Day!
Thats awesome news, Vicki!
ReplyDeleteThat is so EXCITING!!! I'm glad that the thickener and Prevacid are helping. We have another swallow study today- maybe they can find something magic for us too. =P
ReplyDeleteShe is so dang cute!
That is truly, truly wonderful, Vicki!!!! I am so excited for you!!!!!!! She looks so cute! I love that little dress and headband.
ReplyDeleteWe use, HY-TAPE. It is latex free and the adhesive in the tape has Zinc Oxide (the active ingredient in diaper rash ointment) in it. He still gets sore, though. The medical supply company that supplies the oxygen tanks and the cannulas may be able to order some for you free of charge. I like the 1 inch thick tape. The number is...1.800.248.0101...I am not sure if you can order it yourself or if you have to rely on the medical supply company or not. It has worked the best for us.
Brianne is a doll!