Her biggest change is that she's supporting herself --she'll prop up on her arms and peer around at the room when she's on laying on the floor.....and that also means that she's rolling over now too. She'll roll from tummy to back and from back to tummy again.
At bed time I'll put her to sleep on her back and within 5 minutes she'll roll over to her tummy. She's back on oxygen during the night and by morning I'll find her tangled somewhat in the cannula's cords--luckily not around her neck though.
She had a couple of doctor appointments this month...first the pulminologist. He wanted a night monitoring sleep study (at home). I thought she was ready to come off oxygen at night too, but, it showed that she kept oxygen saturation rates in the 80's percentiles for 55% of the time, so that means we are still tethered to the O2 machine at night for a while longer. Good news, she's still maintaining great O2 levels during the day, so we'll visit Dr. Muelenaer in 3 month.
Next visit, Gastrointerology--things are going well here--no problems. We still thicken her milk to honey consistency and she takes previcid. They will have her take another swallow study when she's around a year old to see if she'll tolerate thinner liquids, till then....stay the current course.
The next day was a visit with Dr. Miller, Bri's cardiologist. Last time we visited with her Brianne had a 3.5 cm hole in her heart. Dr. M wanted to keep an eye on it and hoped that it would close on it's own....and it did. She no longer has any problems with her heart and has been discharged from their watchful care. She also showed no cardiac hypertension from low oxygen levels (a concern of Dr. Muelenaer's).
She's full of smiles--but I can't seem to catch them on the camera.
Her favorite food right now is applesauce and she's started eating cheerios.
She enjoys reading books with Delaney and playing with rattles and other small toys with Liam while she's sitting in the high chair.
I got my first "Mom.....B-anne huoot (hurt) me!!" squeal from Liam the other day. Brianne had a small teaspoon in her hand, banging it back and forth, and Liam must've gotten in her way and 'whack', she smacked him right on the head. He told me I should put her in timeout....I'm sure he couldn't understand why he goes there when he hits her- and she doesn't- for the same thing. Ahh, the injustice of life.
Another favorite place of hers is laying on Cailin's bed listening to her read or play her flute.
Her eye's light up when Ryan talks with her and Connor has a way of calming her down when she's upset.
Everything is so exciting! I love that she is pushing up on her arms and that her heart is all better. She is so sweet! Good luck with the night time tangling issues.
ReplyDeleteI'm bummed we didn't get a picture of them together when I was there. I looked all over the church for you with no avail. Next time! ;)
Oh, Vicki...she is so, so, so, DARLING!!!!
ReplyDeleteWe have had that happen here, too. Usually the oxygen cord is wrapped around John's torso but I have found it TWICE wrapped around his sweet little neck. I burst into tears both mornings that I found him that way. It is for that reason that I still strap the apnea monitor around his chest and turn it on every night. I get scared that he is gonna choke himself. (Because he sleeps like a wild man...flipping and flopping all over his crib)
How wonderful that the hole in her heard has closed. She looks so cute. Look at that sweet little head held up high!!
I got a chuckle out of Liam being upset about the injustices of life. I laughed that he felt she should be put in time out.
I can see why you think it is adorable the way she crosses her sweet little feet like that. I just want to gobble up her toes.
I had the hardest time catching John smiling on camera, too.